Emily Rapp Black lost her son when he was nearly 3 years old. Ronan died of Tay-Sachs disease, a rare genetic disorder that slowly and irreversibly destroyed his nervous system. Emily wrote her New York Times bestselling memoir, The Still Point of the Turning World, as a means to grapple with her unimaginable grief.
I first met Emily when she responded to a guest blog post I wrote about my book Parentless Parents. Emily’s son had been diagnosed with this always-fatal illness when she told me she’d already discovered an unexpected and extraordinary lesson. “As a writer,” she reflected, “I was shocked to discover that the experience of horrible grief actually galvanized me to write in a way I had not in years.” Emily, without warning, had hit on an essential truth about grief and resilience: our deepest sorrow can spark tremendous creativity and fuel our capacity to rebound and move forward.
Emily is now an Assistant Professor of Creative Writing at UC-Riverside and her latest book, Casa Azul Cripple, is coming out in 2018. The book explores the intersection of pain, art, and disability through the life and work of Frida Kahlo.